The Roller Coaster Continues: Good & Yuck days

Yesterday (Sunday, 6/14), Chris and I had a great time helping some friends at their under-construction new house in New Jersey. There were a few chores that needed two adults without kids. My friend asked if Chris could help her husband while we wrangled the kids around an unfinished kitchen, tools, etc. Their family has a lot on their plate and it felt good to say, "YES!" to being useful.

We discussed how we would approach safety (wear masks always, and try to be distanced as much as possible). The kids have been isolated for most of the time, and the 4yo is actually pretty good at wearing a mask!

My biggest concern was that I had a few days in a row with really bad stomach stuff directly related to taking a med in the morning. This med is designed to "activate my gut" but it has been doing its job too well, and causing me a lot of pain. I've told my doc, but we are concerned about changing meds for me because that tends to go poorly too. But because it has been so bad, I just skipped this med that morning. I was not sure of the bathroom situation at the house under construction, and I really just needed to be functioning well. 

Helping out our friends was awesome! We loved seeing them and their new home. My heart was so full watching the kiddos play with magnatiles together. I got so many kisses blown my way, and loved hearing the giggles and feet running all over the new house. Chris did some heavy lifting and helped get the chores done. We enjoyed a lunch together, and then went home to rest. (Well, I rested. Chris decided to run some more! He is taking running camp VERY seriously. I am so proud of him!)

Skipping the med went fine, and then today (Monday 6/15) I took it again and I felt AWFUL. I spent most of the day resting because my stomach was in pain and very upset. The trouble with an upset stomach is that I am not eating or drinking very much which is another problem that I am trying to manage! UGH!!!

It is all just hard and frustrating. I am feeling better right now, as the day is ending. I took a shower and tried to do a chore or two. sigh. I wish it were easier. It's just another ride on this roller coaster. 

Tomorrow is another infusion. I will go alone because of COVID rules. 

Wednesday, I will pack for VA, and then on Thursday we hit the road! We are excited to see my sibs and my Dad. We have not planned to see anyone else just yet because we need to be thoughtful about exposure. While NY's virus numbers are looking better, they aren't amazing. I will have gone into to the hospital, so there is a risk there. 

For everyone else, I understand that other states, like VA, are not as serious about masking-up as New Yorkers are. It stinks to not try and see all my Virginia loves, but it is hard to try to manage all the risk. I will talk to the Wisemans and discuss their level of accepted risk as well--it is their home after all! 

For all of these ups and downs, we will keep on going forward. 

Some days are amazing and others are not. 

I will try to keep clear in my mind the amazing days--because they are so real and lovely. 

xo,

a